Survival

Can only admit now was overcome with fear at the last post, about to undergo a second spine surgery toward the end of the month: last week.  I behaved alternately on a daily basis for weeks as if I would not survive, and as if I would. 


As the days before grew shorter, revising the healthcare proxy was in order.  It was only downloaded and completed along with a living will the night before the procedure, at the hotel where my sister had flown in to stay and assist during the surgery and immediate recovery period.  It included funeral arrangements, songs that were to be played during a memorial service, and the division of assets that would remain available.


The day of pre-ops, something happened in the evening where I felt a snap in the back left pelvis, where rods had been extended for stability during the first procedure.  By the following week, an additional or subsequent part gave way and I was barely able to walk the weekend prior to the scheduled time.
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Something had popped in the back right months before another test had been administered with images and showed no signs of deterioration, so when the left began my concerns were minor, as the other had healed.  What happened a week later was of more concern.  I was grateful the date was approaching so that it could be seen and addressed.


Was still walking very slowly when Sis arrived and in less pain.  She noticed the change, however.  We were an hour late for the scheduled arrival time for pre-admission.  Traffic had been unprecedented on the way.  The procedure before ours had complications. It would be another couple of hours or more before I would go in. 


The most recent events were explained to the surgeon, along with having communicated by email following the weekend.  He didn't seem to take it seriously at the time, also stating there would be images taken during the procedure to check the area where new pain had been felt for days.


My sister asserted the anesthesia be administered so that I would be unconscious upon entering the operating room.  I thought it was standard after not being given the option three years before during the first surgery.  I didn't really have an opportunity to give a second opinion before the needle went into the IV.  The thought of seeing power tools for bones wasn't something I had been looking forward to.


I awakened in a recovery room that was very dark.  It was late.  The surgery had taken over seven hours, more than half the planned time for an upper spine correction.  A rod at waist level had broken.  My sister explained so I would understand while heavily medicated.  Then she was immediately gone. 


I finally found a comfortable position to sleep with an attentive nurse until monitoring approved moving into a room.  It had been a late night for the surgeon, yet he was there at 8:00 a.m. when I awoke to give his version.  Two incisions, two draining units attached with tubes, an extra two days in the hospital, still shorter than the first extensive procedure that had me testing the limits of what it could do as well as hunching forward another eight degrees at past two and a half years.  One draining unit then. 


Inflating 'blood clot prevention' on both legs.  Adhesive covering bandages from the top of my neck to the tail bone that would soon begin to itch.  A bed that set off an alarm if you got up on your own, and I would later discover cameras overhead as well, as you don't have a choice if males or females are attending you during any particular shift.  Before leaving the bed, most everything that was attached had to be mounted on a walker just to go to the bathroom, which could not be done without assistance. 


Medications and vitals every two hours on average.  Additional monitoring for low blood pressure.  The same questions repeated every time.  A world class hospital.  Expertly trained staff.  The best hospital experience at a global destination for its expertise, still one did not want to stay any longer than necessary.


I went back to church thinking I may not have survived the last one.  Went into the second thinking maybe I was only wrong the first time.  There was lots of prayer for me to come back, by a lot of people who didn't know me three years ago.  I assert prayer works. 


I drove myself back from the airport after Sis got us there to catch her return flight, a day after discharge.  The first night's short sleep before checkout at the hotel was blissful in contrast to nights just before.  The apartment and pets are not back to normal, nor am I, as I move slowly, testing limits less.  Pain meds only twice today, not three as on the label.  When it comes to bones, knowing where limits are may be best unmedicated, until it becomes necessary. 


My gait is better, I'm standing taller, and the waist is back: an additional bonus.  Had given away lots of figure flattering clothing with waistlines, assuming not having one was permanent.  No regrets.  I'm still walking; still wanted and needed on the planet.  Prayers continue, to fulfill the mission according to a Will that isn't my own alone.

Revelations

Not that bad a parent, not that bad an artist, not that bad a writer, not that bad a comedian.  Bad at self esteem, self worth, and faith.  As much as I preach, can't take my own advice, or unaware I wasn't, until out in the world, paying attention to what's going on with an ear to the ground. 


It wasn't me; it was the culture.  A culture that will point the finger at anyone who isn't sure where their place is.




I've been here before, at a different stage in life, looking through different eyes: young, ignorant eyes.  Thinking the world is as we wish it to be.  It isn't.  There will be things we will never understand. First Corinthians 2:9.




I understand that I've charged too little, asserted too little, insisted too little, and followed through too little.  I do finish what I start, there's just to many irons in the fire, which slows down all of them.  It could be the general family curse: jack of all trades and master of none.  The truth is I'm master of a few, and been distracted from narrowing the plan.




I'm told there is a plan I'm not aware of, from a Higher Power.  I get it.  I'm more patient over time, and more grateful.  It doesn't stop the anxiety and fear, or the trauma that's ingrained that kicks in like an involuntary reflex at the worst possible times.  I'm paralyzed and frozen, conscious of my surroundings and unable to move, except I can move, only in very slow motion.




Keep up appearances.  The look of being poised, collected, and perhaps a little too calm, or even aloof isn't what it looks like.  It's paralysis, an inability to act quickly, it's less indecisiveness than being stuck in slow motion.



I've been depressed, which comes back randomly, when events seem to negate all efforts or progress: the reason for so many irons in the fire.  If one gets shut down, there's another in the pipeline. 




So the revelation is I was interrupted, which I knew.  What I didn't know was the fog I walk through that's almost a dreamlike state as often as not.  It's a survival mechanism that no longer serves me.  Can I shake it by will alone?  No.  That's what Higher Power is for, when I remember to ask.

Waiting, or not

Can't remember a time when my timeline matched everyone else's; my child and I are in sync: we don't procrastinate on priorities. Even without constant updates, it seems I'm regularly ahead of what others take time with, or I'm moving things along when no one else seems to be (except for occasionally not posting 'on time' when other things are being attended to). This is all only perception; my mind doesn't seem to stop.

"Massive Action" is part of a quote by a friend that is neither new nor old. I act like I write, in very long sprints, rarely if ever comfortable resting. There's no time for rest at an age when most are beginning to wind down, there's no stopping now. There are no options, only to keep moving forward.

Everything is so fragile, and timely. It's raining out. Pouring. Glad to be inside, though not for long. Someone is still uncomfortable, much more so than I. I feel them almost as much as if it were me, sometimes as much: the reason stopping or resting is not an option. Someone cannot speak for themselves. Someone cannot say what they really mean. It isn't safe to do so. This is more common than most are aware or think about.

The right words at the right time; the right information at the right moment can mean life or death, or at best an entirely different outcome, which can go in either direction. Uncertainty is only a given, what causes fear is moment to moment. Some claim it's all from within; having seen so much, even that theory remains in question. Those who have not experienced or remember what happens in childhood for many can only comment on popular thought. What's hidden is the fabric of the landscape, like the soil that holds the trees. Never mind the forest; that's just the surface. Seems only the unconscious knows the surface isn't all there is, most of the time.

Regrets, To the Little Girl on the Staten Island Ferry

One resolved, only to acquire another. The intention here is to maintain the most optimistic attitude possible; I am a 'glass half-full' person in the worst of times. Thus, I hope the little girl seen at 2:00 a.m. on the Staten Island Ferry was sad and in tears for anything but what it looked like: another child with an abuser, perhaps a sexual abuser. The person she was with offered a tissue, though I know this type of person very well: trying to look civil in a public setting. His face showed no compassion and avoided eye contact, knowing I was watching.

Because I couldn't get close enough to hear the conversation, I stood up two rows away and watched directly. She looked at me with burning eyes, clearly not wanting to be where she was and at times looking almost as if she wanted to die, to be anywhere but where she was.

There were 'officers' in the back of the boat. It was a twenty-five minute trip. I was sleep-deprived from a long day and could barely put two sentences together, let alone find the right words to express myself effectively, or so I thought. It was a Friday night, and this was perhaps his visitation, or this was a night someone else was unavailable and he was the only one who could 'take care of her'.

Whatever was going on, it didn't look like it was the first time. Either she had just come from somewhere that kept her crying silently during the whole trip, or she was about to experience something that she was helpless to prevent. I pray it was the former; either way, I feel as though I should have acted, though past experience had me frozen. All I could do in those twenty-five minutes was stand during the whole trip and stare at them, looking for a clearer sign to go to the police, who happened to be visible at the back of the boat.

There was an employee a friend knew who worked on the boat in the ladies room, who had disclosed to her that she was regularly beaten by her boyfriend. I was disturbed enough by this to go to an officer the next time I saw her working there and tell them what I knew. His response was that unless the woman went to him herself there was nothing he could do, that 'what if they took action on everyone who made such a report'? I was disappointed and discouraged, thought not surprized.

That experience and my fatigue kept me from going to the back of the boat that night, expecting the same response. This time it was a child, this time who she was with would lie if asked if there was something the child was upset about; he would likely not permit anyone to talk to her directly. She was property, too afraid to speak with who she was with that she couldn't get away from, who spoke in a very low voice with no emotion or expression of compassion as her tears flowed that she wiped herself, refusing the tissue he offered.

I watched helplessly as they got up when the boat got closer to its destination, the little girl, no more than eight, the same age as my son, walked ahead of her captor and faced forward to not have to look at him. I stood as close as I could to her side on the other side of the rope. She glanced at me a time or two, looking terrified, or enraged, or both, maybe at me for not doing anything, maybe because that's what she's always gotten: no one helping or caring, or even knowing that whenever she's with this person, something happens that she can't stop, and can't tell anyone.

By the time I was ready to go to someone they were still in the back of the boat, chatting as they had the whole time, watching no one, untrained, uncaring for any sort of subtle dynamics as these, inaccessible. I was angry that they were not now in the front of the boat, as they should have been.

Still helplessly watching, the seemingly heartless person the child was with took her hand again, as he had when I first spotted them about to get on. They walked together briskly toward the buses and disappeared into the crowd; there was nothing I could have done by then even if I'd been able to keep up with them. An eight year old if sad over anything other than coming from a death of a loved one does not continue to cry in such a way for such a time period unless something is out of the ordinary.

Two days later when I was able to see another cop on another boat I asked what was the procedure when those kinds of things happen. What are they trained to spot or do when nothing is happening though it appears clear that something may be about to happen, something that's happened before and may happen again, sometimes ongoing for years in a child's life with no one knowing. He said different officers are different, though they're not trained to spot such things for the most part, and that I should have gone to them...

I hope you were sad over anything but what it looked like; if I ever see you again or him I will not forget what you or he looked like. I will never forget your face. If I ever see the two of you together again with the same thing going on I promise I'll get help; I'm sorry I may have failed you. I hope you can forgive me. It's sometimes all I can do to protect one child, as I sometimes have to watch helplessly while another goes through what they don't deserve. Please be well, and safe.